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Move Against Migraine

Sponsors & Partners

Our sponsors and partners play a vital role in our efforts to spread awareness, fight stigma and advocate for the millions of Americans living with migraine.

Our Founding Partner

The American Migraine Foundation and American Headache Society (AHS) have a shared history of uniting physicians and patients to serve the migraine community. Founded in 1959, the American Headache Society is the leading professional society focused on headache medicine. In 2010, leaders within the AHS, recognizing the need for a patient advocacy organization, established the American Migraine Foundation as the patient-facing arm of the American Headache Society, with the goal of providing patient resources, raising awareness and supporting research for people living with migraine.

The mission of the American Headache Society is to improve the lives of people impacted by migraine and other headache disorders, by encouraging scientific research and educating physicians, health professionals and the public.

PARTNERS

Achy Smile

Adventures of a Spoonie Mom

Alliance for Headache Disorders Advocacy

Association of Migraine Disorders

American Academy of Neurology

Chronic Migraine Awareness, Inc.

Clusterbusters

Concussion.Org

The Daily Headache

Danielle Byron Henry Migraine Foundation

The Dizzy Cook

Goldren Graine Resource

Global Healthy Living Foundation

The Headache & Migraine Policy Forum

Health Union

Hope for Migraine: CGRP & Emerging Treatments

The Cluster Headache Support Group

Know Your Dose

Medicine X

Migraine.com

Migraine Again

The Migraine Chronicles

The Migraine Diva

Migraine Meanderings

Migraine Strong

Migraine Warrior

Migraine World Summit

The Mighty

Miles for Migraine

My Migraine Life

Parenting with Migraine

Patient Advocate Foundation

Putting Our Heads Together

Runnin’ For Research

Ivy League of Comedy

VEDA

Achy Smile

Achy Smile is a blog written by Erica Nicole Carrasco of Midland, Texas, now living in Fayetteville, North Carolina. She helps her husband, Stephen, raise their two teens, Marissa and Noah, through a life with hemiplegic migraine and comorbid diseases. Their daughter, who also lives with migraine disease, is a full-time student learning how to thrive with Erica at her side. In late January 2018, Erica shared the stage with prominent women in the health industry and talked about her life with migraine at BlogHer Health, an annual blogger conference for women in the health industry. She is a Speak Your Migraine spokesperson and a partner of the American Migraine Foundation.

Adventures of a Spoonie Mom

With a flourishing banking career and becoming #1 Best Selling Author, JP Summers never imagined an unexpected onset of severe head pain, debilitating vertigo, and loss of motor skills would lead to the second type of migraine diagnosis: vestibular. The quality of life she once knew was nonexistent. Living with the migraine disease for three decades still wasn’t enough to prepare JP for the disappointment of one failed treatment after another. Upset with the fact that her symptoms were only getting worse, this romance novelist decided the only way to fight back against her deteriorating health was to turn her misfortune into something positive. She found her true calling as a patient advocate for migraine, cluster headaches, heart disease, rheumatoid arthritis, and fibromyalgia. Adventures of a Spoonie Mom is a blog where JP shares each of her triumphs and struggles as a newly single mom in her early 40s that lives with several invisible illnesses while caring for two teenage boys; one of whom lives with abdominal migraine.

Alliance for Headache Disorders Advocacy

The Alliance for Headache Disorders Advocacy (AHDA) is comprised of national and regional non-profit organizations advocating on behalf of Americans with disabling headache disorders. Since 2007, AHDA has held an annual event called “Headache on the Hill” (HOH), which brings ~100 health professionals, patients, and other advocates to Congress to focus federal resources on reducing the burdens of migraine, cluster headache, and related disorders.

Association of Migraine Disorders

The Association of Migraine Disorders (AMD) is a nonprofit whose mission is to work collaboratively to end migraine pain, by sponsoring relevant research and education initiatives. AMD offers programs to introduce students to headache medicine through shadowing programs and grant. Larger grants are offered to experienced researchers looking to explore new ideas, and these sponsorships are managed by the Migraine Research Foundation.

American Academy of Neurology

The American Academy of Neurology (AAN), offers exclusive member benefits to 32,000 neurology and neuroscience professionals worldwide including students, trainees, neurologists, researchers, nurse practitioners, physician assistants, business administrators, and other non-neurologist clinicians. Together they strengthen neurology’s voice in advocating for and advancing the field of neurology. Benefits include top-quality education and science, practice management tools, clinical guidelines, and much more.

Chronic Migraine Awareness, Inc.

Chronic Migraine Awareness, Inc. is committed to empowering individuals to become their own advocates, alleviating chronic migraine by providing education and support to those whose lives are touched by this debilitating disease.

Clusterbusters

Clusterbusters is a research and educational organization dedicated to finding an effective treatment for cluster headache worldwide. Through research, education, support and advocacy, Clusterbusters supports efforts to find long-term relief from cluster and related headache.

Concussion.Org

Brought to you by the International Concussion Society, Concussion.Org is the number one destination for information related to concussion prevention, diagnosis and treatment. Our mission is to serve medical professionals, athletes, administrators, coaches, patients and the public by providing a central repository of accurate and scientifically vetted concussion research. Working alongside our world-class scientific advisory board, Concussion.org is the most trusted global index on one of the most common, yet least understood, forms of traumatic brain injury.

The Daily Headache

In The Daily Headache, Kerrie Smyres writes candidly about the emotional ups and downs of living with migraine. She also writes about treatment possibilities and strategies for living the fullest life possible with chronic migraine.

Danielle Byron Henry Migraine Foundation

The Danielle Byron Henry Migraine Foundation was established in 2016 in Danielle’s memory. The Foundation’s goal is to raise awareness and provide support and access to treatment for those living with migraine, especially young adults and children.

The Dizzy Cook

The Dizzy Cook provides fun low tyramine and additive-free migraine diet recipes as well as researched articles on natural migraine treatments and educational resources for Vestibular Migraine.

Goldren Graine Resource

The Golden Graine mission statement is to live a fulfilled life with chronic migraine and pain. It is also a platform for others as well. I want to celebrate your victories and give you a place to vent when times are rough. Your disease is invisible, but you are not.

Global Healthy Living Foundation

The mission of the Global Healthy Living Foundation is to inspire, support, and empower people living with chronic illnesses.

The Headache & Migraine Policy Forum

The mission of the Headache and Migraine Policy Forum is to advance public policies and practices that promote accelerated innovation and improved treatments for headache and migraine sufferers. We promote innovation and access to treatment by encouraging the advancement of headache science and innovation, supporting education, and furthering access to prevention and treatment options for all patients.

Health Union

Health Union inspires people to live better with challenging health conditions – combining new, original content every day with digital, social and mobile technologies to cultivate active online health communities. Health Union platforms are dedicated to illuminating the voices and experiences of people with migraine, rheumatoid arthritis, type 2 diabetes, hepatitis C, and more. Its services and offerings foster open and honest interactions about these health conditions between and among patients, caregivers, professionals, providers and industry partners to help all stakeholders make more informed decisions about healthcare.

Hope for Migraine: CGRP & Emerging Treatments

Hope for Migraine seeks to support, guide and educate people who live with migraine who are interested in learning more about the new and emerging treatments. We provide a supportive online group with current, evidence-based articles, medication access information, insurance challenges, and space for people to share their personal experiences with the new treatments including CGRP inhibitors, ditans and FDA approved devices.

The Cluster Headache Support Group

The Cluster Headache Support Group, Inc. is a 501(c)3 non-profit organization dedicated to improving the lives of those suffering with Cluster Headache and other Trigeminal Autonomic Cephalgias and Migraine through Research, Education, Fact-based Information, and Compassionate Support.

Know Your Dose

In partnership with the Acetaminophen Awareness Coalition (AAC), the Know Your Dose campaign educates consumers on how to safely use medicines that contain acetaminophen. By reaching consumers when medicine safety is top of mind, the campaign seeks to raise awareness and promotes four steps for safe acetaminophen use.

Medicine X

At Medicine X we believe everyone should feel informed and empowered, so they can take part in their medical decisions. We translate complicated ‘doctor speak’ into an entertaining and engaging language – so that every person regardless of age, gender, culture or condition, can have access to medical information they can understand.

Migraine.com

Migraine.com is Health Union’s online community dedicated to people living with migraine, where patients and supporters of people living with this condition can connect, share experiences, and learn about managing the condition. At Migraine.com, we understand the challenges of living with migraine. Whether you’re newly diagnosed, undiagnosed, or already know the ropes, the Migraine.com community is here for you. Because we understand migraine is more than “just a headache.”

Migraine Again

The mission of Migraine Again is to help people with migraine suffer less and live more, until there’s a cure. Content website and community founded by patients, for patients. Led by migraine warrior and advocate Paula K. Dumas.

The Migraine Chronicles

The Migraine Chronicles is where health writer and Migraine.com patient advocate Sarah Hackley gets candid about life with chronic migraine. She also shares a regular round-up of other great health bloggers readers may have missed.

The Migraine Diva

The Migraine Diva is a blog owned by Jaime Sanders, who has lived with migraine disease for most of her life. Jaime uses her experience with migraine to advocate about the disabling neurological disease, help raise awareness, and engage others in a conversation to remove the stigma behind this and other invisible illnesses.

Migraine Meanderings

Migraine Meanderings is a community for people living with migraine and other headache disorders. Our vision is to help bring migraine “Out from the Shadows” by putting a real face to this disease, as well as to encourage, support, educate & inspire people with headache disorders to have hope and find ways to thrive, not just survive.

Migraine Strong

Migraine Strong is committed to empowering individuals through education and hope while helping them gain control of chronic migraine. Their Facebook community is dedicated to managing chronic migraine through lifestyle, best medical practices and pure tenacity. They celebrate their members’ little victories and encourage them to thrive with this chronic illness.

Migraine Warrior

Mygraine: Adventures of a Migraine Warrior (also known as The Migraine Warrior Blog) is a site created by Michelle L. Tracy to advocate for migraine awareness by way of educating the general population in addition to empathizing with fellow migraineurs. What you’ll find here are facts about migraines disease, tips and tricks for how to deal with migraine attacks, how to cope with living with a loved one who has migraine disease, sample dialogue for migraineurs when dealing with both the medical community and the general public, reviews of products and treatments that the author has used, personal migraine stories, migraine trivia, and much more!

Migraine World Summit

The Migraine World Summit offers in-depth video interviews with 36 world leading migraine experts to educate patients and improve access to care. Co-hosted by patient advocates Carl Cincinnato and Paula K. Dumas.

The Mighty

The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.

Miles for Migraine

Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun run events, typically a 2 mile walk, and 5k/10k races to raise money for migraine research, and also hosts youth camps for kids, teens and their families impacted by migraine or other headache disorders.

My Migraine Life

Sarah is a mom and a chronic migraine and daily headache sufferer who has tried a gamete of medications, alternative therapies and lifestyle changes.  These experiences led her to write “My Migraine Life“, a website aimed at all sufferers and caretakers devoted to telling stories, raising awareness, giving support, product reviews, and more.

Parenting with Migraine

Parenting With Migraine is a motherhood and wellness blog that offers support and hope to parents who live with migraine or other chronic illness and shares tools and products that can help along the way.

Patient Advocate Foundation

The Patient Advocate Foundation provides case management services and financial aid to Americans living with chronic, life-threatening and debilitating illnesses. Founded in 1996, the Patient Advocate Foundation has helped over 1 million patients located throughout all 50 states access care and overcome financial burdens during the most vulnerable times of illness.

Putting Our Heads Together

Putting Our Heads Together is written by patient educator and advocate Teri Robert. The stated purpose of the blog is “information, support, awareness, and advocacy related to Migraine disease and other Headache disorders.”

Runnin’ For Research

Runnin’ for Research, Inc. (R4R), was founded in 2015 as a charitable organization dedicated to research, awareness, empowerment, and advocacy in all areas of headache and migraine disorders. The primary mechanism to accomplish the missions is the organization and implementation of 5K runs and walks throughout the United States.

Ivy League of Comedy

The Ivy League of Comedy is a premier group of stand-up comedians who specialize in clean comedy, well-written comedy that doesn’t resort to playing on stereotypes or picking on the audience.

VEDA

For over 35 years, Vestibular Disorder Association (VeDA) has been a lifeline of support to anyone affected by vestibular (inner-ear and brain balance) disorders.

If you are interested in learning more about how you can support the American Migraine Foundation, please contact Amy Wickstrom, Executive Director, at [email protected] or (929) 376 1333.

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You should not have to deal with migraine—or pregnancy—alone. It’s critical to have a support network of understanding people who can not only check in on you but also empathize with your experience. Read this article to learn about building a support system. Then consider joining our Move Against Migraine support group on Facebook so you can connect with others who live with migraine.

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This will be helpful in guiding conversations with your doctor about your symptoms. Bring your notes to your next appointment. Here is a guide to having that conversation.

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Don’t give up on your search to find an integrative treatment that works for you. Here are some alternative therapies to look into. Our Resource Library is another great place to find information on these treatments.

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As you work with your doctor on next steps, it will be important to maintain access to reliable resources on migraine. We recommend taking a look at our patient guides, which include useful information like how to talk to your doctor about migraine.

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Treatment options vary, from acute treatment to relieve symptoms to preventive treatment to reduce the number of attacks you experience. There are also behavioral treatment options and lifestyle changes that can help. Learn more on this page.

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Start here. This Diagnosis & Treatment page walks you through next steps after a diagnosis. You could also search our Resources Library to learn more about symptoms, triggers and treatments.

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It will be crucial to have access to reliable resources on migraine as you work to manage this disease. The American Migraine Foundation offers extensive resources to help you explore your symptoms and treatment options.

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It may be worth considering some treatment options to help you manage your symptoms. Here are 5 common alternative treatments for migraine.

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There may be some treatments you haven’t tried. Consider these complementary and integrative treatments, and search our Resources Library for more.

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No matter what you call it—a headache journal, migraine diary, headache tracker—keeping track of your symptoms can be a versatile tool to help better manage your health. It can help you identify patterns over time and help your doctor identify if you are experiencing migraine. Learn more about tracking your symptoms here.

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Nausea and/or vomiting is just one of many symptoms a person living with migraine might experience. Because migraine is a highly nuanced disease, it is important to learn about all possible symptoms that may appear before, during or after a migraine attack, including less common ones such as aura. You can start with this resource.

Whether you have lived with migraine for a few months or a few decades, you know migraine can be a challenging experience. You should continue to seek proper medical attention and access information to help alleviate the burden.

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Yawning and fatigue are typical symptoms of prodrome, the first phase of a migraine attack. Other symptoms can include food cravings and difficulty concentrating. If you think you may have migraine, these answers to common questions can help you further investigate this possibility with a doctor.

Migraine is a complex disease with a range of symptoms that vary from person to person. Common symptoms such as vertigo and dizziness are also associated with vestibular migraine. Learn more about migraine symptoms in our Frequently Asked Questions to see if you may be living with migraine.

Light sensitivity is a common symptom of migraine (as is sensitivity to sounds or smells), but not everyone who has the disease will experience it. Identify other symptoms of migraine and find answers to Frequently Asked Questions to help you start the conversation about migraine with your primary care provider.

While migraine is a common disease that affects 39 million Americans, no two migraine experiences are the same. Symptoms can vary from light sensitivity and dizziness to food cravings or body chills. Explore these Frequently Asked Questions about migraine symptoms to see if you might be experiencing migraine.

Northeast Regional Champions

Ashley Crane (NY)

“To ignore the plight of those one might conceivably save is not wisdom—it is indolence. And such a passive stance will not, I fear, take us far upon the path to progress.”
– Final Fantasy XIV

[email protected]

Kelly Amspacher (PA)

“Maybe you’ve been assigned this mountain to show others it can be moved.”
– UNKNOWN

[email protected]

Southeast Regional Champions

Christine Cottrell (LA)

“I am working my happiness like a full time job.” – Gabrielle Bernstein

Cherise Irons (FL)

“As iron sharpens iron so one person sharpens another.” – Proverbs 27:17

Elisabeth Walker (FL)

“I am a Registered Nurse who is very passionate about helping others and advocating for the migraine community. I have had migraine with aura since I was in my teens and want to work towards a better future for all.”

[email protected]

Southwest Regional Champions

Rainy Travis (TX)

“The best decision I ever made was to love myself as I am.”

Angela Rutherford (TX)

“Having lived with migraine since age 2, today we are living in an amazing time for advances in migraine treatment. Some of the newer medications don’t work for everyone, but finding relief in my lifetime gives me real hope for current and future generations living with migraine.”

Pacific Regional Champions

Kelsey Feng (CA)

“Advocacy is to reduce healthcare disparities in marginalized communities.”

Victorina Andrade (CA)

“When life gives you rain, play in the puddles.” – Winnie the Pooh

MidWest Regional Champions

Sarah Arndt (WI)

“Nobody knows ‘better’ than you. You have always been and continue to be the expert of your own body.” 

Michele Mayer (MI)

“Thank yourself for how far you’ve come. Life hasn’t been easy, but you’ve always found the strength to face another day.” – Roger Lee

We recommend exploring complementary treatments such as biofeedback, green light therapy and aerobic exercise. Learn how these common therapies can help you manage migraine.

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You might have tried some alternative therapies, but did you know about these complementary and integrative treatments? They may be worth exploring. For more information on alternative migraine treatments, visit our Resource Library.

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Finding people whom you can lean on for support can help lift some of the burden of managing migraine before, during and after pregnancy. Our Move Against Migraine Facebook group is full of mothers with migraine who can offer encouragement and support throughout your journey. Join the community today.

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Mounting evidence suggests there may be a connection between migraine and mental health. Anxiety disorders and depression are two of the most commonly reported mental illnesses among people who are diagnosed with migraine. By learning how migraine and mental health impact one another and ways to manage both, you can improve your quality of life. Learn more about the relationship between migraine and mental health in this AMF webinar.

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We are happy to hear this! Pregnancy can add another complicated layer to your migraine journey, but having a strong support system will make it easier to navigate the ups and downs. You can find additional support from people in your position and those who have already experienced pregnancy with migraine in our Move Against Migraine Facebook group.

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Already pregnant? Congratulations! Consider taking a moment to learn about the relationship between migraine and hormones. Did you know 50% to 80% of pregnant people with migraine actually experience a reduction in migraine attacks during their pregnancy?

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Did you know that 20% of women say they avoid pregnancy because of migraine? While migraine thankfully does not affect fertility, it can complicate conversations about family planning and infertility treatments. Learn more about the relationship between migraine and family planning.

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It’s important to work with your obstetrician and your headache doctor when you have migraine to establish a safe treatment plan. If you’re not already working with a headache doctor, use our Find a Doctor tool to find someone in your area. Plan to discuss the FDA’s safety guide for medication use during pregnancy.

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Start by reviewing the FDA’s safety guide for medication use during pregnancy. You may also want to learn about lifestyle changes for migraine management as you consider other lifestyle changes you’re making during pregnancy. If you’re only working with your obstetrician at this time, we recommend adding a headache doctor to your team. Use our Find a Doctor tool to find someone in your area.

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Migraine is a disabling disease that no one should have to go through alone. It’s essential to build a support network of understanding people who can not only check in on you during an attack but also empathize with your experience. Read this article to learn about building a support system. Then consider joining the Move Against Migraine support group on Facebook so you can connect with others who live with migraine.

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You are not alone. If your support system is lacking, consider joining a support group. Finding a community of people who understand exactly what you’re going through is like being welcomed home after a long, tiring day. Our Move Against Migraine support group is a place for you to connect with others (via Facebook) who live with migraine to exchange stories and find community and support.

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That’s great news! Having a strong network of people who validate your experience and support you on the good days and bad is so valuable when you live with an invisible illness like migraine. If you’re interested in connecting with more people in the migraine community, we recommend joining our Facebook support group, Move Against Migraine. There, you will find a wonderful community of people who are ready to listen and lift each other up.

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Did you know? In the 2022 Migraine and Mental Health Connection Survey, almost 60% of patients with migraine reported being diagnosed with an anxiety disorder, 50% reported depression and 25% reported PTSD. This correlation suggests that migraine and mental illnesses may be associated with each other. Access this page to find migraine and mental health treatment options and self-care tips you may not have considered.

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Alternative migraine therapies can work alongside traditional treatments to reduce migraine attack frequency and lessen the impact of symptoms. Learn about common alternative treatments.

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Receiving a formal migraine diagnosis is the first milestone when working with your doctor to identify a personalized and effective treatment plan. Continuing to talk with your doctor throughout the course of your treatment is important for determining the strategies that prove beneficial and those that may not be as effective.

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As you work with your doctor on next steps, it will be important to maintain access to reliable resources on migraine. We recommend a look at our patient guides, which include useful information including how to talk to your doctor about migraine.

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Start your search with these complementary and integrative therapies. Then, consider exploring more treatment options with our other free resources.

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If a doctor has prescribed medication for your chronic migraine and you choose to move forward with that line of treatment, follow instructions carefully. It is crucial to take medications at the recommended times to ensure maximum effectiveness. Additionally, it is important to communicate with your doctor if you experience any adverse effects or if the medication does not seem to be working as expected.

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Consider joining our Move Against Migraine support group on Facebook so you can connect with others who live with migraine.

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The Migraine Advocacy Hub is live on our website! The American Migraine Foundation has created a Migraine Advocacy Hub, a central location for migraine advocacy resources and opportunities to connect with others to mobilize against migraine in your community. Explore the Migraine Advocacy Hub here.

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It’s important to stay updated on the latest migraine research and treatment strategies. The American Migraine Foundation Resource Library provides a wealth of articles designed to assist you in understanding your symptoms and treatment options.

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Rocky Mountain Regional Champions

Kaitlin Hall

“If we do not become active partners in crafting the policies that involve and affect our work, it will be done without our insight, reason, and wisdom.”

– Dr. Rita Colwell

Position Open.