The annual advocacy event brought a record number of participants to Capitol Hill to help #MoveAgainstMigraine
Earlier this month, migraine advocates from across the country gathered for the 11th annual Headache on the Hill—a two day lobbying event held each year, organized by American Migraine Foundation partner, the Alliance for Headache Disorders Advocacy. In the most well-attended Headache on the Hill yet, 145 patients, specialists and advocates gathered in Washington D.C., where they shared their experiences with migraine, headache and other disorders that cause severe pain.
“We have witnessed remarkable growth since the inaugural Headache on the Hill, a true testament to the dedication of physicians and patient advocates across the country,” said Dr. Robert Shapiro, headache advocate and specialist at the University of Vermont Medical Center.
“Together, we are changing the conversation about migraine, and it all starts with a collective commitment to finding better treatment options and advocating for the migraine community”
On the first day, advocates met for an advocacy training session and issues briefing, where they learned about the goal of this year’s event: passing the Opioids and STOP Pain Initiative Act (H.R.4733 / S.2260). If passed, the bill will increase NIH funding for research on understanding chronic migraine, headache disorders, chronic pain and opioids, potentially saving over 100 lives per day.
Thank you, @JeffFlake for meeting with us, we’d love your support on S2260, the STOP Pain Act. #HOH2018 pic.twitter.com/CVByYcaUJ1
— Jenn T (@HeadacheMama) February 13, 2018
The second day was dedicated to participant meetings with their respective congressional delegation on Capitol Hill. Each participant met with at least one congressman and two senators to discuss the importance of funding migraine and chronic pain research to develop safer treatment options. While hustling through the halls of the Capitol Building, a few participants were lucky enough to stop The Late Show’s very own Stephen Colbert!
Gave @StephenAtHome my #HOH2018 elevator pitch…. literally in an elevator.#Opioids&STOPPain@AHDAorg pic.twitter.com/tYBLdJf4Sq
— Robert Shapiro (@headachedoc) February 13, 2018
Many participants also attended the Headache and Migraine Policy Forum’s “Veterans and Migraine Policy Luncheon”, where a panel of headache specialists and veteran support experts discussed how migraine and headache disorders impact the men and women who have served our country. The conversation focused on how the stigma of the disease can keep veterans from seeking treatment, leading to isolation and common comorbidities like depression and anxiety.
Having lunch and listening to a discussion on #headache and #migraine in Veterans. Thank you to @headachepolicy for hosting this today. #HOH2018 pic.twitter.com/S3hnzOgcgi
— Jaime M Sanders | The Migraine Diva (she/her/hers) (@migrainediva) February 13, 2018
This year’s Headache on the Hill event was a striking example of patient advocacy in action. We are truly proud of what participants were able to accomplish in two short days. Their commitment to educating others and pushing migraine to the forefront of conversation brings us closer to finding a cure for this disabling disease. For more information on our latest advocacy efforts and what’s going on in the migraine community, sign our Migraine Support Pledge.
Together we are as relentless as migraine.