Achy Smile is a blog written by Erica Nicole Carrasco of Midland, Texas, now living in Fayetteville, North Carolina. She helps her husband, Stephen, raise their two teens, Marissa and Noah, through a life with hemiplegic migraine and comorbid diseases. Their daughter, who also lives with migraine disease, is a full-time student learning how to thrive with Erica at her side. In late January 2018, Erica shared the stage with prominent women in the health industry and talked about her life with migraine at BlogHer Health, an annual blogger conference for women in the health industry. She is a Speak Your Migraine spokesperson and a partner of the American Migraine Foundation.
Adventures of a Spoonie Mom
With a flourishing banking career and becoming #1 Best Selling Author, JP Summers never imagined an unexpected onset of severe head pain, debilitating vertigo, and loss of motor skills would lead to the second type of migraine diagnosis: vestibular. The quality of life she once knew was nonexistent. Living with the migraine disease for three decades still wasn’t enough to prepare JP for the disappointment of one failed treatment after another. Upset with the fact that her symptoms were only getting worse, this romance novelist decided the only way to fight back against her deteriorating health was to turn her misfortune into something positive. She found her true calling as a patient advocate for migraine, cluster headaches, heart disease, rheumatoid arthritis, and fibromyalgia. Adventures of a Spoonie Mom is a blog where JP shares each of her triumphs and struggles as a newly single mom in her early 40s that lives with several invisible illnesses while caring for two teenage boys; one of whom lives with abdominal migraine.
Alliance for Headache Disorders Advocacy
The Alliance for Headache Disorders Advocacy (AHDA) is comprised of national and regional non-profit organizations advocating on behalf of Americans with disabling headache disorders. Since 2007, AHDA has held an annual event called “Headache on the Hill” (HOH), which brings ~100 health professionals, patients, and other advocates to Congress to focus federal resources on reducing the burdens of migraine, cluster headache, and related disorders.
Association of Migraine Disorders
The Association of Migraine Disorders (AMD) is a nonprofit whose mission is to work collaboratively to end migraine pain, by sponsoring relevant research and education initiatives. AMD offers programs to introduce students to headache medicine through shadowing programs and grant. Larger grants are offered to experienced researchers looking to explore new ideas, and these sponsorships are managed by the Migraine Research Foundation.
American Academy of Neurology
The American Academy of Neurology (AAN), offers exclusive member benefits to 32,000 neurology and neuroscience professionals worldwide including students, trainees, neurologists, researchers, nurse practitioners, physician assistants, business administrators, and other non-neurologist clinicians. Together they strengthen neurology’s voice in advocating for and advancing the field of neurology. Benefits include top-quality education and science, practice management tools, clinical guidelines, and much more.
Chronic Migraine Awareness, Inc.
Chronic Migraine Awareness, Inc. is committed to empowering individuals to become their own advocates, alleviating chronic migraine by providing education and support to those whose lives are touched by this debilitating disease.
Clusterbusters is a research and educational organization dedicated to finding an effective treatment for cluster headache worldwide. Through research, education, support and advocacy, Clusterbusters supports efforts to find long-term relief from cluster and related headache.
Brought to you by the International Concussion Society, Concussion.Org is the number one destination for information related to concussion prevention, diagnosis and treatment. Our mission is to serve medical professionals, athletes, administrators, coaches, patients and the public by providing a central repository of accurate and scientifically vetted concussion research. Working alongside our world-class scientific advisory board, Concussion.org is the most trusted global index on one of the most common, yet least understood, forms of traumatic brain injury.
The Daily Headache
In The Daily Headache, Kerrie Smyres writes candidly about the emotional ups and downs of living with migraine. She also writes about treatment possibilities and strategies for living the fullest life possible with chronic migraine.
Danielle Byron Henry Migraine Foundation
The Danielle Byron Henry Migraine Foundation was established in 2016 in Danielle’s memory. The Foundation’s goal is to raise awareness and provide support and access to treatment for those living with migraine, especially young adults and children.
The Dizzy Cook
The Dizzy Cook provides fun low tyramine and additive-free migraine diet recipes as well as researched articles on natural migraine treatments and educational resources for Vestibular Migraine.
Goldren Graine Resource
The Golden Graine mission statement is to live a fulfilled life with chronic migraine and pain. It is also a platform for others as well. I want to celebrate your victories and give you a place to vent when times are rough. Your disease is invisible, but you are not.
Global Healthy Living Foundation
The mission of the Global Healthy Living Foundation is to inspire, support, and empower people living with chronic illnesses.
The Headache & Migraine Policy Forum
The mission of the Headache and Migraine Policy Forum is to advance public policies and practices that promote accelerated innovation and improved treatments for headache and migraine sufferers. We promote innovation and access to treatment by encouraging the advancement of headache science and innovation, supporting education, and furthering access to prevention and treatment options for all patients.
Health Union inspires people to live better with challenging health conditions – combining new, original content every day with digital, social and mobile technologies to cultivate active online health communities. Health Union platforms are dedicated to illuminating the voices and experiences of people with migraine, rheumatoid arthritis, type 2 diabetes, hepatitis C, and more. Its services and offerings foster open and honest interactions about these health conditions between and among patients, caregivers, professionals, providers and industry partners to help all stakeholders make more informed decisions about healthcare.
Hope for Migraine: CGRP & Emerging Treatments
Hope for Migraine seeks to support, guide and educate people who live with migraine who are interested in learning more about the new and emerging treatments. We provide a supportive online group with current, evidence-based articles, medication access information, insurance challenges, and space for people to share their personal experiences with the new treatments including CGRP inhibitors, ditans and FDA approved devices.
The Cluster Headache Support Group
The Cluster Headache Support Group, Inc. is a 501(c)3 non-profit organization dedicated to improving the lives of those suffering with Cluster Headache and other Trigeminal Autonomic Cephalgias and Migraine through Research, Education, Fact-based Information, and Compassionate Support.
Know Your Dose
In partnership with the Acetaminophen Awareness Coalition (AAC), the Know Your Dose campaign educates consumers on how to safely use medicines that contain acetaminophen. By reaching consumers when medicine safety is top of mind, the campaign seeks to raise awareness and promotes four steps for safe acetaminophen use.
At Medicine X we believe everyone should feel informed and empowered, so they can take part in their medical decisions. We translate complicated ‘doctor speak’ into an entertaining and engaging language – so that every person regardless of age, gender, culture or condition, can have access to medical information they can understand.
Migraine.com is Health Union’s online community dedicated to people living with migraine, where patients and supporters of people living with this condition can connect, share experiences, and learn about managing the condition. At Migraine.com, we understand the challenges of living with migraine. Whether you’re newly diagnosed, undiagnosed, or already know the ropes, the Migraine.com community is here for you. Because we understand migraine is more than “just a headache.”
The mission of Migraine Again is to help people with migraine suffer less and live more, until there’s a cure. Content website and community founded by patients, for patients. Led by migraine warrior and advocate Paula K. Dumas.
The Migraine Diva
The Migraine Diva is a blog owned by Jaime Sanders, who has lived with migraine disease for most of her life. Jaime uses her experience with migraine to advocate about the disabling neurological disease, help raise awareness, and engage others in a conversation to remove the stigma behind this and other invisible illnesses.
Migraine Meanderings is a community for people living with migraine and other headache disorders. Our vision is to help bring migraine “Out from the Shadows” by putting a real face to this disease, as well as to encourage, support, educate & inspire people with headache disorders to have hope and find ways to thrive, not just survive.
Migraine Strong is committed to empowering individuals through education and hope while helping them gain control of chronic migraine. Their Facebook community is dedicated to managing chronic migraine through lifestyle, best medical practices and pure tenacity. They celebrate their members’ little victories and encourage them to thrive with this chronic illness.
Mygraine: Adventures of a Migraine Warrior (also known as The Migraine Warrior Blog) is a site created by Michelle L. Tracy to advocate for migraine awareness by way of educating the general population in addition to empathizing with fellow migraineurs. What you’ll find here are facts about migraines disease, tips and tricks for how to deal with migraine attacks, how to cope with living with a loved one who has migraine disease, sample dialogue for migraineurs when dealing with both the medical community and the general public, reviews of products and treatments that the author has used, personal migraine stories, migraine trivia, and much more!
Migraine World Summit
The Migraine World Summit offers in-depth video interviews with 36 world leading migraine experts to educate patients and improve access to care. Co-hosted by patient advocates Carl Cincinnato and Paula K. Dumas.
The Mighty is a story-based health community focused on improving the lives of people facing disease, disorder, mental illness and disability. More than half of Americans are facing serious health conditions or medical issues. They want more than information. They want to be inspired. The Mighty publishes real stories about real people facing real challenges.
Miles for Migraine
Miles for Migraine is a registered 501(c)(3) Non-Profit with the mission of improving the lives of migraine patients and their families, raising public awareness about headache disorders, and helping find a cure for migraine. Miles for Migraine produces fun run events, typically a 2 mile walk, and 5k/10k races to raise money for migraine research, and also hosts youth camps for kids, teens and their families impacted by migraine or other headache disorders.
My Migraine Life
Sarah is a mom and a chronic migraine and daily headache sufferer who has tried a gamete of medications, alternative therapies and lifestyle changes. These experiences led her to write “My Migraine Life“, a website aimed at all sufferers and caretakers devoted to telling stories, raising awareness, giving support, product reviews, and more.
Parenting with Migraine
Parenting With Migraine is a motherhood and wellness blog that offers support and hope to parents who live with migraine or other chronic illness and shares tools and products that can help along the way.
Patient Advocate Foundation
The Patient Advocate Foundation provides case management services and financial aid to Americans living with chronic, life-threatening and debilitating illnesses. Founded in 1996, the Patient Advocate Foundation has helped over 1 million patients located throughout all 50 states access care and overcome financial burdens during the most vulnerable times of illness.
Putting Our Heads Together
Putting Our Heads Together is written by patient educator and advocate Teri Robert. The stated purpose of the blog is “information, support, awareness, and advocacy related to Migraine disease and other Headache disorders.”
Runnin’ For Research
Runnin’ for Research, Inc. (R4R), was founded in 2015 as a charitable organization dedicated to research, awareness, empowerment, and advocacy in all areas of headache and migraine disorders. The primary mechanism to accomplish the missions is the organization and implementation of 5K runs and walks throughout the United States.
Ivy League of Comedy
The Ivy League of Comedy is a premier group of stand-up comedians who specialize in clean comedy, well-written comedy that doesn’t resort to playing on stereotypes or picking on the audience.